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Bereaved parents' experience of stillbirth in UK hospitals: a qualitative interview study.

机译:失去亲人父母在英国医院的死产经历:定性访谈研究。

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摘要

OBJECTIVE: To obtain the views of bereaved parents about their interactions with healthcare staff when their baby died just before or during labour. DESIGN: Qualitative in-depth interview study, following an earlier national survey. All interviews took place during 2011, either face-to-face or on the telephone. Data analysis was informed by the constant comparative technique from grounded theory. SETTING: Every National Health Service (NHS) region in the UK was represented. PARTICIPANTS: Bereaved parents who had completed an e-questionnaire, via the website of Sands (Stillbirth and Neonatal Death Society). Of the 304 survey respondents who gave provisional consent, 29 families were approached to take part, based on maximum variation sampling and data saturation. RESULTS: 22 families (n=25) participated. Births took place between 2002 and 2010. Specific practices were identified that were particularly helpful to the parents. Respondents talked about their interactions with hospital staff as having profound effects on their capacity to cope, both during labour and in the longer term. The data generated three key themes: 'enduring and multiple loss': 'making irretrievable moments precious'; and the 'best care possible to the worst imaginable'. The overall synthesis of findings is encapsulated in the meta-theme 'One chance to get it right.' This pertains to the parents and family themselves, clinical and support staff who care for them directly, and the NHS organisations that indirectly provide the resources and governance procedures that may (or may not) foster a caring ethos. CONCLUSIONS: Positive memories and outcomes following stillbirth depend as much on genuinely caring staff attitudes and behaviours as on high-quality clinical procedures. All staff who encounter parents in this situation need to see each meeting as their one chance to get it right.
机译:目的:了解失去亲人的父母在婴儿临产前或分娩时与医护人员互动的观点。设计:在较早的国家调查之后,进行了定性的深入访谈研究。所有访谈都在2011年期间进行,无论是面对面还是通过电话进行。数据分析是基于扎根理论的恒定比较技术。地点:英国的每个国家卫生服务(NHS)地区都有代表。参加者:通过Sands网站(死胎与新生儿死亡协会)完成了电子问卷的丧亲父母。在获得临时同意的304位受访者中,根据最大变异抽样和数据饱和度,与29个家庭进行了接触。结果:22个家庭(n = 25)参加了会议。出生于2002年至2010年之间。确定了对父母特别有帮助的特殊习惯。受访者谈到他们与医院工作人员的互动对他们在分娩过程中和长期而言的应对能力都产生了深远的影响。数据产生了三个关键主题:“持久和多重损失”:“使无法挽回的时刻变得宝贵”;和“尽可能最好的照顾到最坏的想象”。调查结果的总体综合封装在元主题“一次正确解决的机会”中。这涉及父母和家人本身,直接照顾他们的临床和支持人员,以及间接提供可能(或可能不会)培养关怀精神的资源和治理程序的NHS组织。结论:死产后的积极记忆和结果取决于真正关心员工的态度和行为,以及高质量的临床程序。在这种情况下遇到父母的所有员工都必须将每次会议视为一次正确的机会。

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